Home > Uncategorized > Butter & Bones: The Healing Power of CLA

Butter & Bones: The Healing Power of CLA

So last night when I “hacked” into my dad’s WordPress account to write my post, I saw that he had an unpublished draft here. I will leave all the links and photos he wanted you all to see, but unfortunately his synthesis and commentary never made it on here. I can tell it’s all copied and pasted from other sites.

Wordle: crohn's dad

This wordle above might seem familiar (his wallpaper). I actually helped him make it the other day. We were sitting on the couch, watching Le Tour De France (it’s always on in our house, every July), and he asked me to help him with his Facebook page. He didn’t really finish the page, but I’ll deal with that later. He couldn’t figure out how to get a good profile and cover photo for this page, and he didn’t want to publish it until he had. I got a good profile picture, which is actually the one I sent off this morning to be in his obituaries online and in the papers. Then I wanted to make him a cool cover photo, and thought of doing a wordle. Well, here it is, and I think it’s fantastic. He loved it so much he’d been putting it everywhere. I hope you all enjoy it.

Yeah, so all my dad got to here was posting a bunch of links. He never even made a point about the Butter and Bones and CLA, although I know from what he talked about that those are all really fantastic things. Our CSA share of meat is ready on Saturday and I don’t know who will go get that, but it sure contains the right bones to make yummy bone broth. I actually think we have some frozen bits of broth ice cubes and things in the freezer.

Here are the links he wanted everyone to see but never got to explain. He was writing this on July 2nd at 2:16, when he definitely was at work….hah typical. Please read these and enjoy:

-Total US Population – 311.6 million http://quickfacts.census.gov/qfd/states/00000.html

-IBD Stats – 1.4 million http://www.cdc.gov/ibd/ (only .4%)

-AARDA estimates up to 50 million Americans have an AD.  http://www.aarda.org/aarda_facts.php  (only 16%)

-Cancer affects up to 12.6 million http://seer.cancer.gov/faststats/selections.php?#Output

-One in four adults—approximately 57.7 million Americans—experience a mental health disorder in a given year. One in 17 lives with a serious mental illness such as schizophrenia, major depression or bipolar disorder 1 and about one in 10 children live with a serious mental or emotional disorder. http://www.nami.org/Template.cfm?Section=About_Mental_Illness&Template=/ContentManagement/ContentDisplay.cfm&ContentID=53155

-An estimated 82.6 million American adults (1 in 3) have 1 or more types of CVD

http://www.heart.org/idc/groups/heart-public/@wcm/@sop/@smd/documents/downloadable/ucm_319585.pdf

-In 2008, 18.3 million Americans had physician-diagnosed diabetes
-Approximately 186,000 people <20 years of age have diabetes
-An estimated 7.1 million Americans have undiagnosed diabetes
-An estimated 81.5 million Americans have pre-diabetes

-The estimated prevalence of overweight and obesity in US adults  is 149.3 million and Among children 2 to 19 years of age, 23.6  are overweight and obese. http://circ.ahajournals.org/content/125/1/e2.full.pdf+html?sid=56ab93a1-89a8-40eb-a4d0-762b8feb77c6

-Circulating zonulin, a marker of intestinal permeability, is increased in association with obesity-associated insulin resistance. http://www.ncbi.nlm.nih.gov/pubmed/22629362

-Obesity, Heart Disease, Diabetes, Cancer & Autoimmune disease all share a connected inflammatory process. http://chriskresser.com/the-autoimmune-inflammatory-model-of-diabesity

Obesity has been associated with increased intestinal permeability and absorption [1]. Obesity is correlated with dramatic
increases in intestinal absorptive capacity by increasing in amounts of absorptive mucosa.

Intestinal permeability regulates molecular trafficking between the intestinal lumen and the submucosa, leading to either
tolerance or immunity to non–self-antigens [3,4]. The intercellular tight junctions (TJs) tightly regulate this paracellular antigen
trafficking. TJs are appreciated to be extremely dynamic structures operative in several key functions of the intestinal epithelium
under both physiological and pathological circumstances [5]. Persistent high circulating levels of inflammatory cytokines, which
are often observed in obese subjects, may be an important contributor to intestinal barrier dysfunction by altering structure
and localization of TJs

Inflammation, a Link between Obesity and Cardiovascular Disease http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2929614/

http://www.ncbi.nlm.nih.gov/pubmed/22722429

-Autoimmune – 50m
-Diabetes – 18.3m
-Undiagnosed & pre-diabetes – 88.6m
-Heart Disease – 82.6m
-Cancer – 12.6m
-Mental Illness – 57.7m

309.8 million

So my dad sent me these last few statistics on Facebook as he was writing it, and said: “But there are only 311 million in the US – Clearly this means that some people have multiple disease, and some people have none. Any suggestions from the math world?” He loved getting me involved in these things, although -regrettably-, I usually laughed him off and ignored him. I responded that “a whole bunch of those are overlaps, i’m sure. this is a statistics-type question, not my strong suit”, which is true. I’ve never taken a statistics class, I’m a calculus girl.

I’m doing better today, but it’s still not real and surely not easy. I will write again soon. Thank you all so so so so so much for the messages here and on Facebook. My family appreciates it, and I know I will personally benefit from all your advice. I can really see now how many people he touched and how much they all appreciated my dad.

I added this to the last post, but I don’t know if you all receive notifications about updates, so here’s the information from the online obituaries if any of you are local or interested or just want to know: Obituaries: Boston GlobeFuneral Home, Long Island

Thanks again, I’ll be back soon

Love, Laura Schachter

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Categories: Uncategorized
  1. venus
    July 11, 2012 at 8:06 am

    I love that you find a comfort behind the screen… a glimpse. what a tribute to your father. Im sure is proud. stay strong and know you can call him forth when ever you need. God is a good God, no matter what God he is to you!

  2. July 11, 2012 at 9:51 am

    You’re doing awesome Laura–your dad would be very proud of you and I can only imagine how difficult this week has been. Thanks for posting the above information and I love the wordle! Praying for strength for you.

  3. Patty
    July 11, 2012 at 4:27 pm

    Hi Laura. Your Dad and I conversed through his blog a few times. My prayers are with you and your family.

    I too have crohn’s and advocate for treatment reform within the large teaching hospital in my city, so far unsuccessfully. I recall sharing this when he blogged about his advocating disappointments.

    And I participate in RUSH, Chicago SCD study whose abstract was just presented at the Digestive Week Conference this summer. I recall your Dad did not know the outcome of this study in a comment he made, and I had intended to somehow send him what I had on that abstract. I hoped that he’d do a post on the studies showing SCD success (RUSH, Univ Mass) if he felt it warranted.

    Your Dad’s work will be surely missed, he did an amazing job of piecing the puzzle together for gut healing. I am an engineer and truely respected and valued his scientific explanations which I used for my healing protocols. I am healing because of his and the other generous IBD bloggers, all of which I owe my life to. I am very saddened to learn of your Dad’s passing, and wanted you to know, the statistics you posted, I’ve been collecting trying to understand how many of us are affected. I was glad to see I was on the right track since I’ll be using those as I continue to advocate for crohn’s treatment reform. He left out a horrible comparsion, the NIH research funding allocated for some of these diseases, in comparison to autoimmunes, which I share:

    Autoimmune:
    23mill affected, direct health care costs 100 bill, NIH research funding 2003 591 MILLION

    Cancer:
    9 mill affected, direct health care costs 57bill, NIH research funding 2003 6.1BILLION

    Heart Disease:
    22 mill affected, direct health care costs 200bill, NIH research funding 2003 2.4BILLION

  4. Amy Celento
    July 11, 2012 at 11:07 pm

    Hi Laura,

    My sympathies to you and your family. Your dad was my customer, for a brief period, when he was at Bank Boston. His advocacy work was really amazing and a testament to his love for you.

    Although. I’m not well-versed in digestive disorders, I know people who have had success with microbial balancing. I know you are figuring out what pills to take and when, and might not want to add to that mix, but the Perelandra Digestive Microbial Balancing solution might give you some support. The ladies at the Perelandra Nature Research Center can answer your questions. They can also talk you through taking Emergency Trauma Solution to help process the shock you’ve experienced.

    May your dad rest in peace.

  5. July 12, 2012 at 12:46 am

    Dear Laura, I am so, so sad to hear of your Dad’s death. I am a “Crohn’s Mom”. My son was diagnosed 11 years ago. I only discovered your Dad’s website a few months ago and I have been reading and studying ever since. It’s been such a great help and encouragement to me, as I’m trying to steer my son in a different treatment direction. Your Dad was obviously a very special person and he has encouraged so many people, many of whom (like me) that he didn’t even know about. My prayers are with you in this difficult time.

  6. July 12, 2012 at 8:33 am

    That’s so sweet of you to post these things. You don’t need me to tell you how much your dad would love that.

  7. Carolyn
    July 12, 2012 at 11:41 am

    hi Laura, thank you for continuing your dad’s work. It means so much to all of us. I am so sorry for you and your family’s loss. We will all miss your father and the contributions he made to all of our health.

  8. lbi
    July 31, 2012 at 3:16 pm

    Hi Laura, I am so sorry for the loss of your father. Losing a parent is devastating…. I only knew your dad through his blog but wanted you to know how much he helped me help my son who has Crohns. I read about LDN on your Dad’s site, had my son’s doctor prescribe it for him, and he is so much better now. His doctor is now using it with some of his other patients as well. I am so grateful to your dad for taking the time to share his knowledge.

    Your dad must have been a very loving and generous man to reach out to others to try and help them. I hope in time your memories will be a comfort to you and your family.

  9. Cynthia
    August 18, 2012 at 8:31 pm

    Laura,
    Thank you for your comments. Your Dad was honestly a true angel from God. I will pray for you and your family during this time. Let me know if I can help you at all.

  10. August 19, 2012 at 9:56 am

    So very sorry for your recent loss. Unfortunately i just found this blog recently. I wish I would have had this information years ago. I’ve been suffering with Crohns for almost ten years and doctors have been essentially useless. The information your father has here is amazing. So glad he was here for you and for all whom he has helped. He will live on in this information and in the hearts of those he has freed from their suffering. God bless you, your mother and the rest of your family. I know he has a special place in heaven for helping so many people.

  11. Anan
    August 30, 2012 at 1:35 pm

    Dear Laura,

    I just learned about the passing of your dad a couple of days ago when I visited his blog. I’m so sorry about your loss. Your dad was a dedicatd and wonderful guy who touched many people. I contacted him when my then 13-year old son was diagnosed with Crohn’s last summer. He was so helpful and generous with his advice and support.

  12. September 8, 2012 at 5:19 pm

    Dear Laura,

    I was saddened to hear of your father’s passing a while a go when I went back to crohnsdad to look up some research he had posted. Although I did not know your father, the availability of the information he gathered in one place on his blog was/is important.

    I simply wanted to take a momemnt amidst some of my own difficult circumstance, and send a prayer your way, that you are finding strength and healing during the time following his loss.

    I am not sure if you have an email address, and hope this post makes it to your attention.

    Kris.

    SCD 2/18/08 for Celiac-type symptoms

  13. Sharon
    October 17, 2012 at 9:54 am

    Laura, i am so sorry to hear of the loss of your dad. He will be greatly missed. I wrote to your dad awhile ago before getting LDN for my 14 yr old daughter with crohns. It was because of your dad that i persued getting LDN for my daughter. I thought i was the only parent in the world that didnt want to give my child remicade, imuran etc until i wrote your dad. She has been on LDN and other supplements now since Jan 2012, unfortantly she doesnt have the diet down yet but shes paying better attention. You and my daughter both had alot in common with the crohns issues so he was so helpful. Its with great sadness to share that my daughter’s dad passed away also in the manner your dad around the same time too. My daughter is now 15, her dad was 52 when he died June 2012. My hearts aches for you and your family knowing first hand the pain my kids are going thru with such a great loss. My daughter has since been hospitalized from another flare. I just want you and your family to know I still go to your dad’s blog often to read all the information he put so much time and love into gathering to help you and others. I was happy to see you are still sharing his work and continuing his blog the best you can. I’m very proud of you Laura and i hope you and your family find peace knowing he has helped so many children like yourself. I hope your doing well, i will keep you and your family in prayer.
    Hugs to you,
    Sharon

  14. November 13, 2012 at 6:40 pm

    Hi Laura. I am the class correspondent for Vassar class of ’79. I send my deepest condolences. The power of fatherly love is indeed strong. Sending good vibes your way and a hug. Kathleen Balcezak Bruce Vassar ’79, proud of your work here and of your father’s incredible contribution to solving the puzzle of this disease.

    • November 18, 2012 at 12:46 am

      Thanks Kathleen.
      I haven’t yet figured out how to manage this blog in my life here at vassar. I keep up with making sure people’s comments are approved so everyone can see, but I haven’t contributed anything since this summer. I noticed that according to the site stats, people are still visiting the site on a regular basis. I feel compelled to write something for them and let them know how I’m doing. But I’m just not sure if I’m ready for that yet. It does make me happy to see people commenting and visiting still, though.

  15. kristin sparks
    January 25, 2013 at 5:52 pm

    I just came across your Dad’s Blog yesterday and all I can say is “what an angel”. There is so much information here and the answers to so many questions I have. What a champion he was for you! My heart goes out to you and is truly clear how much love he had for you. i hope you and your family are doing well. God bless!

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